Thursday, November 09, 2006

I'm often asked why did I write Don't Leave Me This Way?
I had alot to say! I didn't write it for cathartic reasons,
because I was determined to not let the stroke define me.
Although my anecdotes are unique to me (and there are
some laugh-out-loud ones), my patient care seems to be a
common thread with readers that have been through the
system. My goal is to help patients help themselves and
to improve the doctor/patient relationship. I can see I'm
already making a difference, although it is a s-l-o-w process--
just like stroke recovery.

Is Don't Leave Me This Way for the general reading masses? Yes.
It is for any one that has had to face something hard--whether it
is physical or emotional. It is about going through identity
changes: being a wife and a mother--marriage and parenting.
While it details my true comeback story from a devastating
hemorrhagic stroke, it encompasses every facet of life when
given lemons and how to make the grandest lemonade one
could imagine!

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5 Comments:

Anonymous Anonymous said...

I love your book! I found it at the library yesterday and was up all night reading it.

I had a small cerebral hemorrhage in October 2005. I had a crazy hospital experience with 2.5 weeks of sedation and all sorts of Alice in Wonderful medical experiences.

God Bless you and your husband, son, and your big rollicking family.

Kathleen

http://www.kathleenbell.com

11/15/2006 8:04 AM  
Anonymous Anonymous said...

I just finished your book and feel as if everyone should read it. I can't even imagine what you went through and commend you for being so positive and fighting so hard to get back to your normal life. I have a 2 year old and earlier in the summer was struck down by an illness that made me incapable of doing anything, even walking. I was terrified because I felt that no one could understand how I was feeling, even though my husband and family tried to do everything they could. Your book made me appreciate my life and I feel even more thankful now that I have my health and my family and my friends.

11/25/2006 3:14 PM  
OpenID RMWALSHRN said...

i TOO HAVE GOTTEN TO EXPERIENCE A LEFT HEMIPARESIS/HEMIPLEGIA. tHIS mARCH '07 MY LIFE CHANGED IN A SECOND. mY SON FOUND YOUR BOOK-i DIDN'T STOP READING UNTIL i FINISHED IT 2 DAYS AFTER i RECEIVED IT ON CHRISTMAS. yOU WERE ME-i HAVE CRIED OFF AND ON BECAUSE SOMEONE ELSE WAS EXPRESSING HOW IT FEELS! iRONICALLY i WAS A STROKE NURSE PRACTITIONER IN 3 DIFFERENT HOSPITAL PROGRAMS AND I HAD NO IDEA WHAT MY PATIENTS WENT THROUGH-BUT i DID KNOW IT WAS HORRIBLE. i CAN USE MY FINGERS ON BOTH HANDS THOUGH MY lEFT IS VERY WEAK. i AM WORKING ON STRENGTHING MY LEFT THIGH SO i WILL LIFT MY KNEE WHEN i WALK. uNLIKE YOU, i AM A SINGLE WOMAN WHOSE FAMILY SAID THEY WOULD HELP BUT HAVE ONLY BEEN WILLING AND ABLE TO DO A FEW THINGS. mY SON HAS BEEN GREAT, BUT HE IS GETTING MARRIED jAN 5 '08 AND HIS WEDDING AND TEACHING JOB HAVE KEPT HIM BUSY. i FIND I STRUGGLE EVERYDAY TO MEET BASIC NEEDS-FOOD AND TRANSPORTATION BEING AT THE TOP OF THE LIST. i'VE MOVED ABOUT EVERY 3 WEEKS TO SOMEONE'S HOUSE, NOW i STRUGGLE W/ FINDING AN AFFORDABLE DECENT PLACE TO LIVE BY MYSELF. MY FAMILY HAS NO ROOM FOR ME, NEITHER DOES MY SON. sO i NEED TO FIND A PLACE TO LIVE AND HOPE THAT i CAN AFFORD IT AFTER mARCH WHEN MY LARGER DISABILITY PAYMENTS STOP. MY SSI HAS STARTED BUT IS NOT ENOUGH TO LIVE ON AFTER MY SHORT TERM DISABILITY ENDS. i'M TRYING TO BUILD UP MY STRENGTH SO i CAN GO TO WORK BY aPRIL. i CAN'T GET TO A GYM AND I HAVE NO ONE TO HELP ME THERE, BUT i DO HAVE EXERCISES i DO AT HOME. i FRACTURED MY LEFT CLAVICLE 8 WEEKS AGO AND iT HAS PREVENTED ME FROM DOING MUCH EXERCISE DUE TO PAIN AND THEN SURGERY. i HAVE TO INSTILL IN MYSELF THE DISIPLINE TO EXERCISE SO i CAN GET OUT OF THIS HELL HOLE MY LIFE HAS BECOME. yOU ARE RIGHT, ATTITUDE IS EVERYTHING. iT'S JUST HARD TO GO IT ALONE. i CARRY YOOUR BOOK W/ ME TO REMIND ME THAT i WILL GET BETTER SO WHAT IF i'M THE ONLY PERSON HELPING ME. i'M THE ONE WHO COUNTS. THANKS FOR WROTING THIS BOOK. i WISH i COULD BE BETTER AT NOT FEELING SORRY FOR MYSELF LIKE YOU WERE. i KNOW YOU HAD SOME SORROW, BUT YOU HANDLED IT SO WELL. REGINA WALS

12/27/2007 6:05 PM  
Blogger Jenny said...

Julie,

I just finished your book. Loved it. Wanted to say thank you for sharing your story.

Jenny

3/26/2008 3:30 PM  
Blogger carol said...

I LOVED YOUR BOOK,I BOUGHT IT,PLAN TO LET MY FRIENDS READ IT,I TOO HAD A BAD STROKE IN 2007,I CAN RELATE TO SO MUCH IN YOUR BOOK ,I KNOW AS I WAS READING IT I WOULD SAY BEEN THERE DONE THAT.THANK YOU FOR SHARING YOUR STORY.YOU ARE SO BRAVE.

8/18/2010 8:50 PM  

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